Podcast

On the heels of “Rare Disease” Month in Washington, 14th & G host Dean Rosen goes “Beyond Rare” with two rare disease leaders. Rosen discusses advocacy and policymaking with Ultragenyx Executive Director of Public Policy and Public Affairs Lisa Kahlman and spotlights the powerful story of how two parents transformed their daughters’ diagnosis into a mission to drive research, policy change, and hope, featuring Firefly Fund co-founder Pam Andrews.